Children with Down syndrome often have tiny ear and nasal passages. And that low tone I mentioned yesterday actually affects internal organs as well. It can make airways, that are already smaller than average, floppy.

When Frankie was a newborn, she made a horrible and scary noise when she was sleeping – it was called stridor and was a symptom of her narrow esophagus. She has had a few bouts of croup – the first of which came on 2 hours into an 8 hour flight from London to New York. And perhaps most scary, she has had several choking incidents. The worst one earned us an ambulance ride to the ER. Thankfully she was fine but it was terrifying.

Frankie regularly sees the ENT to make sure all is well, but all of the above, as well as apnea, chronic ear infections and enlarged tonsils/adenoids, are all par for the course with DS and compounded by those tiny ear and nasal passages.

These are all things that typical children can experience as well, but they seem to grow out of them quicker than kids with DS. Thankfully I think we are finally coming out the other end for most of these inflictions…but don’t be surprised if you see me still cutting tangerines segments in half!